Personal Stories

Sep 6, 20233 min read

Tuning the Mind: Hazwady's Fight Against Anti-NMDA Encephalitis

Meet Hazwady, 39, a seasoned guitar teacher and a gifted songwriter at Christofori Music School. From the outside, his vibrant performances

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You Ting Ng

Aug 23, 20232 min read

Living With Anti-NMDA Encephalitis

Anti-NMDA encephalitis is a complex autoimmune disorder that can bring waves of neurological problems, causing significant challenges for bo

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From Storytelling to Storybaking: How I Adapted to Life with Ankylosing Spondylitis

Nicole Chan

Jul 2, 20233 min read

From Storytelling to Storybaking: How I Adapted to Life with Ankylosing Spondylitis

Jumaini Ariff, a professional storyteller, was diagnosed with Ankylosing Spondylitis (AS) in 2021. She experienced chronic back pain and swe

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Ankylosing Spondylitis and Decision Making: Navigating Life's Challenges with a Chronic Illness

Nicole Chan

Mar 9, 20233 min read

Ankylosing Spondylitis and Decision Making: Navigating Life's Challenges with a Chronic Illness

Olivia Yeo, 25, diagnosed with Ankylosing Spondylitis, shares her experiences with the autoimmune condition. It has affected decisions in he

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Learning to Love and Manage Yourself While Living with Lupus Nephritis

Nicole Chan

Mar 1, 20233 min read

Learning to Love and Manage Yourself While Living with Lupus Nephritis

Ady, a 42-year-old woman, shares her experience of living with Lupus Nephritis, an autoimmune disease she was diagnosed with at the age 12

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From Career Changes to Home Design: Navigating Rheumatoid Arthritis

Nicole Chan

Mar 1, 20233 min read

From Career Changes to Home Design: Navigating Rheumatoid Arthritis

Louis, 31, was diagnosed with rheumatoid arthritis in 2017. She shares how the condition has affected her day-to-day life, including difficu

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Navigating Relationships with a Chronic Illness: My Experience with Behcet's Disease

Nicole Chan

Mar 1, 20232 min read

Navigating Relationships with a Chronic Illness: My Experience with Behcet's Disease

Amelia Chen, 39, was diagnosed with Behcet's Disease in 2020. She shares how the condition has impacted her daily life, particularly in rela

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Living with Multiple Sclerosis & Rheumatoid Arthritis - Maggie Mok

sherrysoon

Jan 2, 20233 min read

Living with Multiple Sclerosis & Rheumatoid Arthritis - Maggie Mok

Hi everyone, my name is Maggie Mok and I’m 49 years old. I work part-time and I fly kites as a hobby. About 3.5 years ago, I lost my...

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Overcoming the Odds: From Banker to Behcet's Disease Survivor

sherrysoon

Jul 5, 20222 min read

Overcoming the Odds: From Banker to Behcet's Disease Survivor

“Be thankful and happy!” Esther was diagnosed with Behcet's disease in 2015. She underwent multiple operations and chemotherapy...

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Overcoming the Challenges of Pemphigus Vulgaris: Farhan’s Inspiring Story

sherrysoon

Apr 16, 20223 min read

Overcoming the Challenges of Pemphigus Vulgaris: Farhan’s Inspiring Story

Despite the challenges and hardships of battling Pemphigus Vulgaris, Farhan's journey serves as an inspiration for those fighting autoimmune

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One Disease, Different Experiences: Rheumatoid Arthritis

Nicole Chan

Mar 29, 20227 min read

One Disease, Different Experiences: Rheumatoid Arthritis

Three ADSG members, Abigail, Louis and Natalie*, share their experiences with rheumatoid arthritis as part of our One Disease, Different Exp

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One Disease, Different Experiences: Myasthenia Gravis

Nicole Chan

Mar 15, 20229 min read

One Disease, Different Experiences: Myasthenia Gravis

Two ADSG members, Nicole Chin and Zuo Ann share their experiences with MG as part of our One Disease, Different Experiences feature for Auto

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Living with UCTD & Relapsing Polychondritis - Jenny Koh

sherrysoon

Mar 12, 20222 min read

Living with UCTD & Relapsing Polychondritis - Jenny Koh

“Never give up. Even if you feel defeated, you can proudly say you fought a good fight.” Hi everyone, I am Koh Jia En Jenny, 38 years...

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One Disease, Different Experiences: Systemic Lupus Erythematosus (SLE)

Nicole Chan

Mar 7, 20224 min read

One Disease, Different Experiences: Systemic Lupus Erythematosus (SLE)

Four ADSG members, Ady, You Ting, Lauryn and Grace share their experiences with SLE as part of our One Disease, Different Experiences featur

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Living with Ankylosing Spondylitis - Gaya Selvam

sherrysoon

Feb 27, 20222 min read

Living with Ankylosing Spondylitis - Gaya Selvam

“Live life to the fullest everyday.” Hello! I’m Gaya and I work full time in the healthcare sector and own an online business as a side...

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sherrysoon

Dec 31, 20213 min read

Living with Polymyositis - Peh Xiujuan

"Everything happens for a reason." I am Xiujuan, a mother of a 9 years old boy. Currently, I’m working part time in banking operations. I...

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How Azlina Alias' Artistic Journey Helped Her Cope with Rheumatoid Arthritis

sherrysoon

Nov 16, 20212 min read

How Azlina Alias' Artistic Journey Helped Her Cope with Rheumatoid Arthritis

Azlina Alias suffered from undiagnosed rheumatoid arthritis that caused chronic pain and swelling for decades, which eventually made her bed

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Living with Autoimmune Encephalitis - Franz See

sherrysoon

Oct 17, 20214 min read

Living with Autoimmune Encephalitis - Franz See

“I think anyone with an autoimmune disease will know that it can be emotionally and physically draining. But I also think that finding...

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sherrysoon

Sep 5, 20214 min read

Living with Lupus - Angeline Q

“Living with Lupus makes me take life more seriously and I take better care of myself now because I don’t want to trouble my loved ones.”...

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My experience of the COVID-19 vaccine as a patient living with vasculitis

sherrysoon

Jun 24, 20213 min read

My experience of the COVID-19 vaccine as a patient living with vasculitis

Sherry, who has vasculitis, initially had doubts about getting the COVID-19 vaccine due to concerns about potential side effects with their

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